USEFUL LINKS
The Alzheimer's Association leads the way to end Alzheimer's and all other dementia — by accelerating global research, driving risk reduction and early detection, and maximizing quality care and support.
24/7 HELPLINE 800.272.3900
https://www.alz.org/
For information on neurological disorders or research programs funded
by the National Institute of Neurological Disorders and Stroke, contact
the Institute's Brain Resources and Information Network (BRAIN) at:
BRAIN
P.O. Box 5801
Bethesda, Maryland 20824
800-352-9424
www.ninds.nih.gov
Private voluntary organizations that offer information and services to
those affected by headache include the following:
American Council for Headache Education (ACHE)
19 Mantua Road
Mt. Royal, NJ 08061
856-423-0258
800-255-2243 (ACHE)
achehq@talley.com
www.achenet.org
National Headache Foundation
820 N. Orleans, Suite 217
Chicago, IL 60610-3132
info@headaches.org
http://www.headaches.org
Tel: 312-274-2650 888-NHF-5552 (643-5552)
Fax: 312-640-9049
Non-profit organization dedicated to service headache sufferers, their
families, and the healthcare practitioners who treat them. Promotes research
into headache causes and treatments and educates the public.
Charlie Foundation to Help Cure Pediatric Epilepsy
1223 Wilshire Boulevard , Suite 815
Santa Monica, California 90403
(310) 395-6751
(800) FOR-KETO (367-5386)
www.charliefoundation.org
Citizens United for Research in Epilepsy (CURE)
730 N. Franklin, Suite 404
Chicago, Illinois 60610
312-255-1801
info@CUREepilepsy.org
www.CUREepilepsy.org
Epilepsy Foundation
8301 Professional Place
Landover, Maryland 20785
301-459-3700
800-332-1000
postmaster@efa.org
www.epilepsyfoundation.org
Epilepsy Institute
257 Park Avenue South
New York, NY 10010
212-677-8550
website@epilepsyinstitute.org
www.epilepsyinstitute.org
Parents Against Childhood Epilepsy (PACE)
7 East 85th Street , Suite A3
New York, New York 10028
(212) 665-PACE (7223)
pacenyemail@aol.com
www.paceusa.org
Antiepileptic Drug Pregnancy Registry
MGH East, CNY-149, 10th Floor
149 13th Street
Charlestown, Massachusetts 02129-2000
888-233-2334
www.aedpregnancyregistry.org
Epilepsy Therapy Development Project
11921 Freedom Drive, Suite 730
Reston, VA 20190
EpilepsyCure@aol.com
http://www.epilepsytdp.org
Tel: 703-437-4250
National Institute of Dental and Craniofacial Research (NIDCR)
National Institutes of Health, DHHS
31 Center Drive, Room 5B-55
Bethesda, MD 20892
nidcrinfo@mail.nih.gov
http://www.nidcr.nih.gov
Tel: 301-496-4261
American Chronic Pain Association (ACPA)
P.O. Box 850
Rocklin, CA 95677-0850
ACPA@pacbell.net
http://www.theacpa.org
Tel: 916-632-0922 800-533-3231
Fax: 916-632-3208
Provides self-help coping skills and peer support to people with chronic
pain. Sponsors local support groups throughout the U.S. and provides assistance
in starting and maintaining support groups.
American Council for Headache Education
19 Mantua Road
Mt. Royal, NJ 08061
achehq@talley.com
http://www.achenet.org
Tel: 856-423-0258 800-255-ACHE (255-2243)
Fax: 856-423-0082
Non-profit patient-health professional partnership dedicated to advancing
the treatment and management of headache and to raising public awareness
of headache as a valid, biologically-based illness.
National Foundation for the Treatment of Pain
P.O. Box 70045
Houston, TX 77270
NFTPain@cwo.com
http://www.paincare.org
Tel: 713-862-9332
Fax: 713-862-9346
Not-for-profit organization dedicated to providing support for patients
who are suffering from intractable pain, their families, friends and the
physicians who treat them. Offers a patient forum, advocacy programs,
information, support resources, and direct medical intervention.
Mayday Fund [For Pain Research]
c/o SPG
136 West 21st Street, 6th Floor
New York, NY 10011
mayday@maydayfund.org
http://www.painandhealth.org
Tel: 212-366-6970
Fax: 212-366-6979
The Mayday Pain Project works to increase awareness and to provide objective
information concerning the treatment of pain.
American Pain Foundation
201 North Charles Street, Suite 710
Baltimore, MD 21201-4111
info@painfoundation.org
http://www.painfoundation.org
Tel: 888-615-PAIN (7246)
Fax: 410-385-1832
Independent non-profit information, education, and advocacy organization
serving people with pain. Works to improve the quality of life for people
with pain by raising public awareness, providing practical information,
promoting research, and advocating the removal of barriers and increased
access to effective pain management.
Arthritis Foundation
1330 West Peachtree Street, Suite 100
Atlanta, GA 30309
help@arthritis.org
http://www.arthritis.org
Tel: 800-568-4045 404-872-7100 404-965-7888
Fax: 404-872-0457
Volunteer-driven organization that works to improve lives through leadership
in the prevention, control, and cure of arthritis and related diseases.
Offers free brochures on various types of arthritis, treatment options,
and management of daily activities when affected.